Monday, February 2, 2015

It's just been one of those days where nothing major is happening, yet everything major is happening. I can't seem to shake this cold/sinus infection/upper respiratory infection/whatever it's trying to be this week. It wouldn't be such a big deal except for the fact that CVID mixed with autoimmune issues complicate everything.

I planned to have a nice, relaxing snow day. We got 19 inches of snow yesterday, so snuggled up with a book on the couch sounded like the most brilliant plan. But, waking up with horrible leg and stomach cramps at 2 am foiled that plan.

Back to the immunologist I went for more bloodwork and yet another antibiotic change (this is the 5th since the beginning of December--it's February 2nd). I don't know whether to be grateful or frustrated that my doctor wants to up my infusions. I had a nice, long streak followed by a fast plummet. I know it's the nature of this disease, but I still can't seem to wrap my head around it. How is it that I can feel so great one day and feel so much like death the next? How is it that I start to question myself when others start to question it? I guess that's what having an invisible chronic illness is.

I'm slowly learning to take this one day at a time--some days are better than others--today is one of the "other" days. Fingers crossed that tomorrow is one of the better days.